Mar
29
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A Five-Year-Old Must Travel From Tennessee to Find the Expertise to Treat His Rare Brain Condition
From the time he was 12 months old, young Caleb Johnson suffered from intractable epilepsy due to a hypothalamic hamartoma. His condition resulted in recurring daily seizures, with more than a dozen seizures occurring some days. Hypothalamic hamartoma is an extremely rare growth in the brain. It is so rare that most neurosurgeons will never encounter the condition in their entire careers. The seizures severely impacted Caleb's development and personality.
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